@article{,
title= {dhcp-pilot-rel-1},
journal= {},
author= {dHCP consortium},
year= {2017},
url= {http://www.developingconnectome.org/project/},
abstract= {Initial release of the dHCP dataset (40 subjects)},
keywords= {neuro},
terms= {dHCP DataRelease1 data set: Terms of Use
 
The Consortium of King's College London, Imperial College London, and University of Oxford (KCL-ICL-OX dHCP Consortium) has collected data from human subjects (data subjects) under the Developing Human Connectome Project (dHCP data). I understand that the KCL-ICL-OX dHCP Consortium will release Open Access dHCP Data, i.e. dHCP data which has an extremely low potential for identification of data subjects (see #3 below) after an individual researcher has agreed to these Open Access dHCP Data - Terms of Use I request access to Open Access dHCP Data for NON-COMMERCIAL AND NOT-FOR-PROFIT research purposes (research), and I agree to the following terms:

I declare that I am employed by, or a student of, a non-commercial/not-for-profit organisation and I will not use dHCP data for any direct commercial purpose, such as fee-for-service work. I understand that if I wish to use dHCP data for any direct commercial purpose, my institution will be required to obtain a commercial licence from the KCL-ICL-OX dHCP Consortium, and the KCL-ICL-OX dHCP Consortium has no obligation to provide such a commercial license.

I will use dHCP data responsibly and only for non-commercial research that enables the advancement of science and medicine.

I understand that Open Access dHCP Data consists of MRI brain imaging data and non-sensitive data (age at birth, age at scan and gender) which have been obtained from data subjects. In order to protect data subjects, these data have been pseudonymised and subjected to post-collection processing (data processing) to remove any data elements that could (with suitable technology) otherwise be reconstructed and/or processed to reveal facial features of the data subjects. If I receive any dHCP data, in error, that have not been subjected to the data processing I will:

I will promptly notify the KCL-ICL-OX dHCP Consortium if (a) dHCP data has been accidentally lost or stolen or (b) has been accessed by another person, and (c) of any change in my contact details.

I understand that dHCP data are experimental and may contain errors (including errors and/or omissions in data processing), and I accept that they are provided on an "as is" basis and without any warranty (a) of accuracy, completeness, or fitness for any purpose or (b) that their use will not infringe the rights of any third party. Any representations or warranties given by any representative relating to dHCP data, either expressed or implied, are excluded to the maximum extent permitted by law. Except to the extent prohibited by law, the KCL-ICL-OX dHCP Consortium accepts no liability for any kind of damages or loss arising in any way from my use of dHCP data or from making dHCP data available to me, however caused including without limitation, economic damages.

I will comply with all applicable legislation and with all relevant rules and regulations concerning data protection, information governance and ethical research. If required, I will ensure I have ethical approval in place to use dHCP data for the research from the relevant committee or office that oversees research on human subjects e.g. Research Ethics Committee, Institutional Review Board or similar.

I understand that dHCP data are being made available to me on the understanding that they are only for use by me and co-workers at the same institution who have also signed this agreement in their own right. I will keep the dHCP data strictly confidential, and will not publish, share or redistribute dHCP data and will refer any requests (including requests from my supervisors, co-workers or those that I supervise) for access to dHCP data to the KCL-ICL-OX dHCP Consortium.

I understand that dHCP data are, and will remain, the property of the KCL-ICL-OX dHCP Consortium and I agree that these Terms of Use do not grant me any ownership rights to the dHCP data nor shall they affect the rights of the KCL-ICL-OX dHCP Consortium to provide dHCP data to others.

I will protect dHCP data and prevent unauthorised use and access, by using suitable safeguards (administrative and/or technical and/or physical).
In any Publication reporting the results of the research, I will only include images compiled from dHCP data that conform to the specifications set out below:

I will only share or redistribute data derived from dHCP data (derived data), such as multiple-subject data averages , when they do not contain or consist of dHCP data, and cannot be reverse-engineered to generate dHCP data, and there is no foreseeable risk of a data subject being identified from the derived data. I will contact the KCL-ICL-OX dHCP Consortium and discuss making any derived data available via the KCL-ICL-OX dHCP Consortium if the derived data do not meet the specifications for sharing or redistribution, as set out in this paragraph.

I will adequately cite & acknowledge the constituent institutions of the KCL-ICL-OX dHCP Consortium, and funding of the Developing Human Connectome Project by the European Research Council when making any kind of public communication of results (abstracts, papers, posters, book chapters, oral presentations, digital media etc.) obtained using dHCP data or resources (Publication). All printed and digital Publications derived from dHCP data shall contain the following wording in the acknowledgments section: "Acknowledgement: These results were obtained using data made available from the Developing Human Connectome Project funded by the European Research Council under the European Union's Seventh Framework Programme (FP/2007-2013) / ERC Grant Agreement no. 319456".

When making any Publication I agree to cite relevant publications describing the methods used by the KCL- ICL-OX dHCP Consortium to acquire and process the data. Appropriate citations in any Publication will depend on the type and use of dHCP data. An annotated and up-to-date list of KCL-ICL-OX dHCP Consortium publications for consideration is available at http://www.developingconnectome.org/dhcp-publications/

I agree to provide authorship to appropriate KCL-ICL-OX dHCP Consortium researchers if they have made an academic contribution to the Publication, and in such case I will provide a pre-submission copy of the Publication for the authors to approve/comment on prior to submission. I understand that authorship is not required by KCL-ICL-OX dHCP Consortium researchers where their sole contribution is providing dHCP data.

I understand that if I fail to comply with these Open Access dHCP Data - Terms of Use my privileges to access dHCP data will be immediately terminated. If my non-compliance relates to the privacy of data subjects I understand that any, or all, of the constituent institutions that make up the KCL-ICL-OX dHCP Consortium may take further action against me, including legal action and/or reporting my non-compliance to my employer(s) and/or any organisation that registers and/or places sanctions on persons who have failed to comply with obligations relating to privacy of data subjects.

Unless specifically renewed my rights to use dHCP data will automatically expire 5 years from the date I agree to these Open Access dHCP Data - Terms of Use. Additionally, I understand that KCL-ICL-OX dHCP Consortium may at any time (a) give 30 days notice to terminate or vary my rights to use dHCP data, or (b) may terminate my rights to use dHCP data upon immediate notice in the event of privacy concerns for the data subjects. Upon expiry or termination I will immediately cease using dHCP data except for the limited purpose of validating, justifying or responding to queries about analyses during the period of the licence, and provide ‡ written confirmation of destruction to the KCL-ICL-OX dHCP Consortium.

I declare that I am employed by, or a student of, a non-commercial/not-for-profit organisation and I will not use dHCP data for any direct commercial purpose, such as fee-for-service work. I understand that if I wish to use dHCP data for any direct commercial purpose, my institution will be required to obtain a commercial licence from the KCL-ICL-OX dHCP Consortium, and the KCL-ICL-OX dHCP Consortium has no obligation to provide such a commercial license.

I will use dHCP data responsibly and only for non-commercial research that enables the advancement of science and medicine.},
license= {},
superseded= {399421efa4890ad1929156acec4af4a6f01a0d2d}
}